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Die Rolle von Geschwisterkindern beatmeter Kinder

Geschwisterkinder von (invasiv) beatmeten Kindern müssen oft und viel "zurückstecken". Die ganze Familie muss im Umgang damit unterstützt und begleitet werden. @curaplus family care

PIIS0882596320306941

Having a child with chronic respiratory illness and home mechanical ventilation (HMV) may not
only affect the ill child, but also the family, including well siblings' everyday life and physical and mental wellbeing.
Purpose: To explore the perspectives of parents to a child with HMV on well siblings' lives. Design and
Methods: A qualitative phenomenological-hermeneutic approach using semistructured interviews with eight
families, that included a child on HMV andwell siblings. Datawere collected fromMarch to June 2019 at a Danish
University Hospital. Results: Three main themes emerged: Tying emotional bondswith both children, Protection
of everyday life forwell siblings and A different family life - sharing attentiveness. The findings showed that being
a parent to anHMV child and well siblings is complex tomanage, andmay make parents feel inadequate towards
their children. Conclusions: Parents feel inadequate in being parents to both the HMV child and well siblings,
often transferring adult responsibilities to thewell sibling, and sometimes leaving thewell siblings in the shadow.
 

Wie kann man die Pflegequalität von zu Hause beatmeten Menschen optimieren?

How to improve the quality of care for people on home mechanical ventilation...